I know I get frustrated with my body. I want to recover immediately and just get back to normal. I have to admit that as slow as my progress has been, I am noticing progress. For example, I am stronger in the mornings now. I actually have a little stamina to do a few things in the morning before I start getting dizzy and feel completely drained for the day. That ~ I am calling a win!! Put it in the victory column. I'm taking what I can get for now! I'm finally wrapping my head around what I've been through this round. I guess it makes sense I'm having a tougher time with the ole bounce back. I'm starting to see the light though, and that helps. That really helps.
I just returned from my appointment and it wasn't great, but it wasn't terrible. The good news is that Dr. Raghavan actually talked to Dr. Olson while I was there! Yay for another victory! Why was that so hard? They are on the same page now and we have a plan! My H&H is slowing creeping up. I'm in the double digits now at 10. My INR was a low 1.4 (it should be around 2.5). She increased my coumadin dosage but cautioned me to be extra careful since I seem to be a bleeder at lower levels. They also decided to go ahead and start my Churg Strauss treatment. It's the chemo drug we've been waiting & waiting to start. I'm not allowed to go back to work for two more weeks. After that I'll be trying half days and easing back in to the routine. Both doctors thought this is the perfect time to go ahead and test the side effects and impact of this drug before I'm back at work. They also agreed that it's crucial to get me off the steroids as soon as possible too. This treatment will hopefully replace steroids! Whoo hoo! Sooo, tomorrow, with Zofran (nausea meds) on hand, I am starting my new treatment. Let's see what this body is ready to handle?! I know this medicine is going to be the ultimate answer ~ my body just needs to find the strength to handle it...
