Monday, July 25, 2011

Day One ~ Familiar Faces/Familiar Failures

My first day back at National Jewish was filled with highs and lows. It was so good to be back in this comforting place where I know they "never say never"! I know my well being and improvement is their priority. Teamwork oozes throughout the building. In some ways, you feel like you're among celebrities when you're at National Jewish because of the level of excellence that is upheld.

My day began with an appointment with Dr. Katial, the Immunologist that performed my aspirin desensitization before my heart surgery. He asked for a summary of how my asthma/health has been since then. We had a pretty fun conversation because of my tendency to minimize the severity of my history. :) He caught on quickly and called me out! I guess I have been a bit "sicker" than I prefer to admit.

He ordered a truckload of labs and said he and Dr. Olson would review the results after they have more information and touch base with me.

From there, I moved on to radiology for CTs of my sinuses and my chest. In the hallway, I ran into Dr. Olson. She gave me a hug and asked what had happened so far. When I reported that I had already met with Katial, she turned to go talk with him about his plan.

My last test for this short day was the pulmonary function test in the box on that darn third floor. :(  As the elevator rose higher I could feel my muscles tensing up. My peak flows have not been superb lately. Dr. Katial even gasped at the numbers from my morning spirometry. I knew all I could do was my best, I am here to get better. The technician couldn't get a consistant reading so she had me repeat the test time after time after time. It was terrible. I felt like such a huge failure, but what else could I do - I can't make my lungs work any better - I've tried - believe me - my will is quite powerful, but not that powerful...

Sadly, this was a familiar failure. It was nothing new, but still quite frustrating. To add salt to the wound, she said the tests were showing a lot of truncation. That means my VCD (vocal cord dysfunction) isn't under control like I thought it was. Ugh!! Sometimes I just want to scream with all this information. I must remind myself, that I am in the best place for failing though. I have the best team on MY side and they are beyond determined to help me have a better life.

I know this is all for good.

A few pics from our VRBO
Oh yes! That's a fancy chadelier over the bed! We were living it up!

The cute little kitchen.


Every rental needs a pretty pink bathroom :)