After a little over a week back on a higher dose of steroids, I was back to myself! I did wake up pretty sick on the 6th with a fever and congestion. Luckily it was the first day of fall break. I went to see Dr. Greisner. He gave me an antibiotic and I kind of got the vibe that he didn't want to do more than that. Anything that I asked about Medrol he deferred to Dr. Myers and wouldn't even discuss.
I went on in for my scheduled labwork to check my cortisol level on October 7th. I hadn't heard anything by the 12th so I called the office. Finally, after not being able to get through on the phone, I decided to go over there. Debbie drove me over and waited while I ran up.
The nurse gave me a post-it note that said "Cortisol level still low but better. Go ahead and start taper again." Call me crazy ~ I wanted off steroids more than anyone would ever understand, but just a week earlier, this same doctor told me I was near multiple organ failure!! Now, with no check up or follow up scheduled, no plan of action, now, with a post-it he tells me to start the taper again!!!! I felt sooooo alone! I felt like no doctor was willing to treat me or take care of me. Nobody wanted to deal with the complications so they just passed them off assuming I would explain it to the next doctor. Oh I was getting so frustrated! If only I lived closer to National Jewish!
Ultimately, my desire to be off steroids won over my fear of organ failure or lack of medical care. :) I began the taper and basically decided to just take care of myself until I found a doctor that would tell me what to do.
