Yesterday I basically went through the motions of the day. I still felt the same as before, but was relieved to be home. I tried to get an appointment with Dr. Raghavan, but there were no openings. I had to settle for waiting until today. I actually thought that could be a good thing because it would give her time to talk with Dr. Olson so she'd be prepared to see me today.
I arrived at the appointment feeling very unsteady, most likely from the activity of bustling about. I was there from 9:30-12:50. Most of the time was spent waiting. Sadly, it was a very frustrating visit. Dr. Olson had called her, but she had not taken the time to call her back yet so she didn't have a plan for me. My H&H level was still very low and she didn't check my INR level. She said she wasn't sure why they hadn't given me a transfusion in the hospital, but that's all she said about it?? She ordered labs which took the nurses seven painful tries to find success. She also told me to go ahead and start the coumadin again on my regular dosage and return Tuesday for more labs. She said she'd call Dr. Olson as soon as these labs were back. Before I left, she told me I could go back to work by mid next week if my labs were good and I showed a great deal of improvement.
I left the appointment in a state of confusion. I want to go back to work more than anyone, but WHAT?? I'm in worst shape now than I was ten days ago when they said my immune system wouldn't be able to handle fighting the slightest bug. Is she just throwing her hands in the air and giving in? I felt like everything she did today was just a blind motion. And, as far as the coumadin goes, her advice was the exact opposite of Dr. Olson's. It's like she didn't even look at the whole picture of me and everything that's going on for my well being. I refuse to take a chance at repeating last weekend and I trust Dr. Olson's advice lightyears more. So, I'm going to hold off on the coumadin until Sunday night. My H&H level is too low to start it today. I'm also going to insist that Dr. Raghavan call her at my appointment Tuesday if she hasn't yet. This just can't continue. If she is going to be my doctor, she is going to have to take care of me and be invested in my treatment. I can't do this on my on much longer. I need help getting better. I deserve to be better.
