After my return from Denver, Dr. Raghavan was immediately on top of scheduling everything Dr. Olson had requested. She worked major miracles with scheduling. I was set up for a sinus CT on that first Wednesday back. The next week I had appointments with the ENT, speech therapist, and pulmonologist back to back.
Dr. Hughes, the ENT spent a lot of time with me. He recommended surgery, but didn't want to go forward with it until he had the go ahead from Dr. Olson concerning my heart. He also performed a hearing test and results showed hearing loss in both ears caused by the infections.
Wafa, the speech therapist was fantastic. She was so interested in setting goals and helping me to improve my VCD. She was also interested in partnering with my speech therapist, Julie from National Jewish. I was comforted and relieved after our appointment.
Dr. Thompson, the pulmonologist talked with me about the events of the past year and seemed excited about the possibilities yet to come. He looked through my file of the tests that have been done and reports given. He agreed that I needed to begin pulmonary rehab and see a rheumatologist. He was looking forward to talking with Dr. Olson on the phone to discuss next steps and said he would get back with me after they spoke.
What a difference a month makes. I hope and pray these changes are real and right. I'm in this. I'm exhausted. I feel bad almost all the time. But I have a new spark of hope and I'm not gonna stop. I'm gonna continue to do everything they ask and jump through every hoop because I know it's all for good because God is in it with me.
