Jenn took us to the Bluegrass airport Monday afternoon. Our flight was scheduled to leave smack in the middle of a huge nationwide snowstorm - seriously! And I had to be in Denver by 7:30 Tuesday morning - no excuses! :) I was determined that all would be well...an believe it or not...it was. Each of our flights were on time and flowed without a hitch. God is good! We landed in a blustery, snow covered Denver at about 9 p.m. mountain time. The temp was negative something insane ~ but we were there ~ luggage and all. Life is good.
We rented an Explorer at the recommendation of the attendant and were on our way. I was behind the wheel and miles from my calm self. The roads were treacherous. I mean are you kidding me? I expected Denver to be all over this snow removal situation. Oh my, that was one driving experience I NEVER wish to repeat. We had to stop twice to clean the ice from the mirrors and windshield. Later I discovered that's where I must have lost my precious sub-zero glove-lol-(nothing a quick trip to Target couldn't fix).
Anyhow - we did make it to the beautiful, warm hotel where we quickly unloaded and crawled into bed to rest up for the first day at NJ.
This is my place to record a small part of my life that sometimes consumes me ~ my medical journey. The amazing thing is that God is All in it and through it all, I know it all works for His Good! I write so I will always remember each of His miracles & how they came about...
Monday, January 31, 2011
Thursday, January 27, 2011
ear infections & flying won't mix
I'd been working like crazy all week to prepare for being out all next week. Without fail my to do list was still miles too long when I woke with crazy ear pain. Nooooooooo!!!! Everyone knows that ear infections and flying won't mix. I have four days until my flight leaves. I didn't have a temp when it was time to go to work, so I decided I had to tough it out until I could get into to the doctor. I just had too much to do and had already missed so much work. I called Dr. Raghavan's office during planning and lovely Andrea, the receptionist was able to get me in immediately after work. Yes - no sick day - now I just had to find strength to get through the day...
The doctor said I had a "raging" ear infection and a fever. She prescribed an antibiotic and provided some tips for easing the pain on the flight. She warned me that it would still be pretty rough. She also suggested that I take the next day and weekend off to get well before the trip. Ha, ha-ha, ha ha ha - are you kidding? Who has time to lounge around for three days before having a five day sub while you're in another state? Not me. I was just going to have to get well while working restfully. ;)
The doctor said I had a "raging" ear infection and a fever. She prescribed an antibiotic and provided some tips for easing the pain on the flight. She warned me that it would still be pretty rough. She also suggested that I take the next day and weekend off to get well before the trip. Ha, ha-ha, ha ha ha - are you kidding? Who has time to lounge around for three days before having a five day sub while you're in another state? Not me. I was just going to have to get well while working restfully. ;)
Friday, January 21, 2011
dr. woody the great
The fabulous Dr. Woody came through for me ~ or should I call her Ghandi?? That's who I felt like I was trying to contact when I called Central Baptist and asked to leave her a message!! They were completely baffled by my request. I lost count after the first five reconnections and new phone numbers I was given to try to make the connection. Finally it happened. I was told to call on Monday at noon and someone would page her with my number. Believe it or not, it happened exactly like that...finally :). She returned my call within minutes and was delightful. I began by sincerely thanking her for changing my life. We chatted for a few minutes and I could really tell that my words meant a lot to her. She gladly and highly recommended Dr. Chitra Raghavan in Beaumont. I trusted her completely and called right away to make a consultation appointment. I was doing this the right way this time. I wasn't taking anymore chances on doctors wigging out on me after they got in too deep. The sweet receptionist gave me an appointment for that Friday. I started praying for this new doctor immediately. :)
The appointment was better than I ever expected. She talked to me about my history and really listened to my concerns. She read Dr. Olson's entire report and agreed with everything. She was totally on board. She told me that any patient Dr. Woody cared enough about to refer to her was worth all of her effort. She examined me, listened to my lungs and even looked at my ears and throat. She noticed my lungs and ears were still not in top condition and made suggestions for the weekend. I was completely impressed. Before she left the room to copy the report, she hugged me and said that even though I may feel like she doesn't know what I've been through, she can see from the report that it's big, it's been tough, and she's going to do all she can to make things better. Wow ~ I teared up after she walked away. My prayers had been answered ~ I finally felt like I had a doctor. What relief.
To make a good day even better, as soon as I got home, Kaci, Dr. Olson's nurse called to check in on me. She and Dr. Olson just wanted to make sure that I was doing better so I would be able to fly on the 31st. Things were looking up on this sunny Friday.
The appointment was better than I ever expected. She talked to me about my history and really listened to my concerns. She read Dr. Olson's entire report and agreed with everything. She was totally on board. She told me that any patient Dr. Woody cared enough about to refer to her was worth all of her effort. She examined me, listened to my lungs and even looked at my ears and throat. She noticed my lungs and ears were still not in top condition and made suggestions for the weekend. I was completely impressed. Before she left the room to copy the report, she hugged me and said that even though I may feel like she doesn't know what I've been through, she can see from the report that it's big, it's been tough, and she's going to do all she can to make things better. Wow ~ I teared up after she walked away. My prayers had been answered ~ I finally felt like I had a doctor. What relief.
To make a good day even better, as soon as I got home, Kaci, Dr. Olson's nurse called to check in on me. She and Dr. Olson just wanted to make sure that I was doing better so I would be able to fly on the 31st. Things were looking up on this sunny Friday.
Tuesday, January 18, 2011
a plan and a schedule
Dr. Olson did call as promised on Monday. She wanted to add some asthma meds and said I would have to talk with Dr. Caudill. I was so done though. He had crushed me and made it so clear that he wanted nothing more to do with me. At this point, I didn't have a choice, I needed a prescription and he was my doctor. She knew I was apprehensive and wanted to talk with him about her plan anyway. She spoke with him on Tuesday and called me again on Wednesday. She said she'd shared her ideas. She asked him to see me as soon as possible to check my lung infection and start the new meds. She also let me know that they were working on my schedule and she hoped to have me out there at the first of February.
I emailed Dr. Caudill and he replied that he didn't see a need for an office visit and he wasn't sure about the new meds. On Friday I got a call from the pharmacy that they had been called in. That email sealed the deal for me. I was ready to look for a new doctor. I decided to contact Dr. Woody (my hospitalist from CB) and ask her for a recommendation. I couldn't depend on a doctor that wasn't interested in treating me or working with other specialists.
Courtney, my scheduler from National Jewish called on the 13th with an update on the process. She called on the 18th to let me know that I was scheduled for the first week of February. I would be seeing Dr. Katial on Monday the 1st and Dr. Olson on Friday the 4th. Other tests would be scheduled in between.
I emailed Dr. Caudill and he replied that he didn't see a need for an office visit and he wasn't sure about the new meds. On Friday I got a call from the pharmacy that they had been called in. That email sealed the deal for me. I was ready to look for a new doctor. I decided to contact Dr. Woody (my hospitalist from CB) and ask her for a recommendation. I couldn't depend on a doctor that wasn't interested in treating me or working with other specialists.
Courtney, my scheduler from National Jewish called on the 13th with an update on the process. She called on the 18th to let me know that I was scheduled for the first week of February. I would be seeing Dr. Katial on Monday the 1st and Dr. Olson on Friday the 4th. Other tests would be scheduled in between.
Friday, January 14, 2011
Another Weird Therapy Appointment :/
I went back to voice therapy today expecting to work on strategies to help me when I'm having trouble and learn some new exercises. Much to my surprise (and discomfort) that didn't happen. The doctor asked me how I've been and noticed I was a little wheezy (which could have been great for practice I would think). After I answered, there was a long quiet and awkward silence. I decided to mention that I'd been practicing the breathing exercises I was taught by the therapist at National Jewish. She said that was good, wrote something on a paper, and asked if I'd like to come back in two weeks. What??? Why would I come back? We just stared at each other in bizarre silence? I paid a $20 copay for a 12 minute twilight zone episode. This experience was just too weird for me. I found it funny to talk about, but not exactly beneficial. I guess I paused a bit too long because she said, "well, let's do three weeks instead". Great, that sounded like it just might interfere with my trip to Denver and I'll have to cancel ~ I agreed immediately and left!
Friday, January 7, 2011
frustration, confusion, and comfort
It's been a pretty frustrating first week back. The fevers have continued throughout the week and now my left ear has started hurting. I've been emailing Dr. Caudill and he has seemed indifferent about treating me. He finally offered to see me this afternoon to take a look at my ears. I've also emailed him about the December report from Dr.Olson. It came in last week and I had some questions about some of the recs she'd listed. I wondered when and if he was wanting to start the plan. He replied that he didn't intend to start anything at this point. I was beyond frustrated. What happened to the doctor that was so interested in helping me? The doctor that promised to work with the doctors from National Jewish and continue the plans they developed to help me get well? I didn't understand what had changed? He was suddenly so different. He was acting like he didn't want to be my doctor anymore. I can't deal with this - I just want a doctor - a good doctor.
I was even angrier when I left his office. He only looked in my left ear. He said, "Yep, it's infected too, keep taking the antibiotics. You're lungs don't sound too good either." He didn't even bring a stethoscope into the room with him. He couldn't have cared less about treating me. The only good thing that came from the appointment was that I got him to write a letter so I can have donated sick days at work. Before I left he told me he thought it was time I start accepting that this is how things are for me. I was crushed. Only one month ago Dr. Olson was preaching the exact opposite to me. How could he say such a thing? I left with no hope of feeling better physically and feeling more frustrated and confused than before. Maybe he was right.
Just like a gift, the phone rang at 6:20 p.m. It was the comforting voice of Dr. Olson. She was just calling to check in on me since I had been sick when I left Denver back in December. She could immediately tell that I wasn't well and could hear my wheezing. I quickly updated her on the past month and she was so disappointed. She had been so hopeful about things turning around for me. The news that my peak flows had been below 250 since December was appalling to her. She insisted that I needed to get back out there for next steps. It couldn't wait for April as we had previously planned. I was so caught off guard that I was speechless. How could I afford another trip now? But at the same time, what relief, I had to go, could another trip make a difference? My head was spinning. Her immediate advice was to get to a UTC to change the antibiotic since the ear infection had spread, get a chest x-ray to check for pneumonia, and start prednisone to get my peak flows back on track. I couldn't get on a plane until I was stable.
She comforted me and told me that it was possible for me to feel better than this. I just need a doctor to be on board with the plan and on top of things. She promised to talk with me Monday to discuss the x-ray results and her plan. What a rollercoaster! I just want to be well - I just want to be able to work without missing days. I am so thankful for this doctor in my life. This fight is wearing me down and she is truly a gift from God. I pray that answers and relief comes soon.
I was even angrier when I left his office. He only looked in my left ear. He said, "Yep, it's infected too, keep taking the antibiotics. You're lungs don't sound too good either." He didn't even bring a stethoscope into the room with him. He couldn't have cared less about treating me. The only good thing that came from the appointment was that I got him to write a letter so I can have donated sick days at work. Before I left he told me he thought it was time I start accepting that this is how things are for me. I was crushed. Only one month ago Dr. Olson was preaching the exact opposite to me. How could he say such a thing? I left with no hope of feeling better physically and feeling more frustrated and confused than before. Maybe he was right.
Just like a gift, the phone rang at 6:20 p.m. It was the comforting voice of Dr. Olson. She was just calling to check in on me since I had been sick when I left Denver back in December. She could immediately tell that I wasn't well and could hear my wheezing. I quickly updated her on the past month and she was so disappointed. She had been so hopeful about things turning around for me. The news that my peak flows had been below 250 since December was appalling to her. She insisted that I needed to get back out there for next steps. It couldn't wait for April as we had previously planned. I was so caught off guard that I was speechless. How could I afford another trip now? But at the same time, what relief, I had to go, could another trip make a difference? My head was spinning. Her immediate advice was to get to a UTC to change the antibiotic since the ear infection had spread, get a chest x-ray to check for pneumonia, and start prednisone to get my peak flows back on track. I couldn't get on a plane until I was stable.
She comforted me and told me that it was possible for me to feel better than this. I just need a doctor to be on board with the plan and on top of things. She promised to talk with me Monday to discuss the x-ray results and her plan. What a rollercoaster! I just want to be well - I just want to be able to work without missing days. I am so thankful for this doctor in my life. This fight is wearing me down and she is truly a gift from God. I pray that answers and relief comes soon.
Sunday, January 2, 2011
So Thankful for the UTC
This was the 4th day on the z-pak and it didn't seem to be making a real difference, but I wasn't feeling terrible. My ear was bothering me a little more when I woke up this morning though. I just shrugged it off. After church, Stacey and I met at school to work on new reading groups and get things ready for the week. As we were talking, apparently I was holding my right ear. She asked if it was hurting, and realized what I was doing. It was hurting quite a bit more. I decided to focus on the things that had to be done first.
Within the next hour I was in full blown ear pain. I finished up my work and headed home. By the time I got home, it was 4 p.m. and I felt terrible. I started looking up local urgent treatment centers and all of them closed at 4 on Sunday except the one on Dove Run. I didn't want to go there at all. I waited another hour and the symptoms only worsened. I had to go.
At the UTC the doctor said I had a temp of 103.6 and the worst inner and outer ear infections he has seen in an adult! He was also quite concerned about my wheezing, but I convinced him that my regular doctor would treat that later. He sent me on my way with a new antibiotic and ear drops with a promise that the fever and pain would be gone by Monday.
Monday...the first day back to school in fresh new 2011, and I would once again, be absent. When will things change?
Within the next hour I was in full blown ear pain. I finished up my work and headed home. By the time I got home, it was 4 p.m. and I felt terrible. I started looking up local urgent treatment centers and all of them closed at 4 on Sunday except the one on Dove Run. I didn't want to go there at all. I waited another hour and the symptoms only worsened. I had to go.
At the UTC the doctor said I had a temp of 103.6 and the worst inner and outer ear infections he has seen in an adult! He was also quite concerned about my wheezing, but I convinced him that my regular doctor would treat that later. He sent me on my way with a new antibiotic and ear drops with a promise that the fever and pain would be gone by Monday.
Monday...the first day back to school in fresh new 2011, and I would once again, be absent. When will things change?
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